BACKTRACK:
First - A huge apology for leaving you hanging all this time! (and a big thanks to all of you that checked in!) The good news....my toes ended up in the water! :) My EEG came back showing no signs of a seizure at this point, and my Neurologist (Love him!) is leaning towards Migraine Attacks. I started a few medications, preventative and abortive and discussed fun stuff like Cognitive and Vestibular Rehab. My Neuro set me up with a Social Worker in the Cognitive Unit to help coordinate care and resources, so overall it was a great appointment and step in the right direction!
That day the direction was SOUTH - to the Cape! Where I spent 3 amazing nights! It was therapeutic to say the least! Thanks to some good friends who let me borrow their cottage, and another one who came down to visit. It was total chill, escape from life...just Michelle time! 1 Word PERFECT!
(Side Note: One of the reasons why it has taken me 2 months to post a new entry is that writing is something I use to LOVE to do and frankly, I was pretty good at!....now....most of the time, it's often borderline painful! My thoughts aren't as coherent or organized as they use to be, it takes me 5 times as long to put together a simple paragraph, AND, I always feel I have to be in a good mood or come across that everything is OK when I write. But it's not me anymore. Things are more upside down then they are right side up in my world...but, I'm learning how to deal with it, and make accommodations. So just a disclosure: This may not always be the best writing work you've seen, or I may be in a foul mood (shocker!) when I post something. But...it's life! It's my life. It's good, it's bad, sometimes ugly, but always a trip!
UP TO SPEED:
So those medications I went on for the migraine attacks....yeah....seemed to work at first and then my broken brain decided, not so much! Chris and I went to go see the Zac Brown Band (which we consulted my Neurologist on before hand) and it messed up my brain pretty good. It's almost like it can't handle all the stimulation. I kept saying I swear I can feel what a child who is autistic must feel (but not know the normal difference). I could literally FEEL the vibrations of the music hitting the concrete floor, metal ceiling (20th row of course!)..the lights, people dancing...everything...was crazy! My new medication did seem to help, as I wasn't in fetal position! It was a great show...although I'm sure everyone else enjoyed it more. I did everything right...didn't drink alcohol, stayed hydrated, took a nap, you name it, and yet...the meds kept me up all night leaving me sleep deprived with a scrambled brain...and for the next 2 plus weeks pretty much spent the days in a dark room in bed. Oh...yeah, with a migraine (the head pain was new)on steroids, anti nausea meds, etc...and landed in the ER one day. GOOD TIMES. I am now scheduled to see a Neurologist that specializes in Headaches. Unfortunately, it's not until October! From what I've gathered from my Neuro and the ER Dr., due to my TBI, my migraines are not typical, nor is my response to medication...so I am a "complicated patient" (Hot ER Drs words!) - Remind me to tell THAT story some day - all I can remember is being in pain, and a hot ER Dr giving me a Venti style caffeine IV drip! (I kid you not!) It was heaven!
So here's to a new start - more frequent posts (good or bad - but always trying to find humor) and always being thankful for my good friends/family that care so much!
